Abstract

BackgroundImplementation of long-term condition management interventions rests on the notion of whole systems re-design, where incorporating wider elements of health care systems are integral to embedding effective and integrated solutions. However, most self-management support (SMS) evaluations still focus on particular elements or outcomes of a sub-system. A randomised controlled trial of a SMS intervention (WISE—Whole System Informing Self-management Engagement) implemented in primary care showed no effect on patient-level outcomes. This paper reports on a parallel process evaluation to ascertain influences affecting WISE implementation at patient, clinical and organisational levels. Normalisation Process Theory (NPT) provided a sensitising background and analytical framework.MethodsA multi-method approach using surveys and interviews with organisational stakeholders, practice staff and trial participants about impact of training and use of tools developed for WISE. Analysis was sensitised by NPT (coherence, cognitive participation, collective action and reflective monitoring). The aim was to identify what worked and what did not work for who and in what context.ResultsInterviews with organisation stakeholders emphasised top-down initiation of WISE by managers who supported innovation in self-management. Staff from 31 practices indicated engagement with training but patchy adoption of WISE tools; SMS was neither prioritised by practices nor fitted with a biomedically focussed ethos, so little effort was invested in WISE techniques. Interviews with 24 patients indicated no awareness of any changes following the training of practice staff; furthermore, they did not view primary care as an appropriate place for SMS.ConclusionThe results contribute to understanding why SMS is not routinely adopted and implemented in primary care. WISE was not embedded because of the perceived lack of relevance and fit to the ethos and existing work. Enacting SMS within primary care practice was not viewed as a legitimate activity or a professional priority. There was failure to, in principle, engage with and identify patients' support needs. Policy presumptions concerning SMS appear to be misplaced. Implementation of SMS within the health service does not currently account for patient circumstances. Primary care priorities and support for SMS could be enhanced if they link to patients' broader systems of implementation networks and resources.Electronic supplementary materialThe online version of this article (doi:10.1186/s13012-014-0129-5) contains supplementary material, which is available to authorized users.

Highlights

  • Implementing self-management approaches have the potential to improve health outcomes and reduce the fiscal burden on health care systems [1]

  • Whilst primary care has been identified as a key provider of self-management education and support because of its reach and increasingly central role in chronic disease management [5,6], general practitioners (GPs) have been reluctant to refer to external self-management education programmes because of a fear of fragmenting care and ambiguity over patient benefit [7]

  • Whose idea was this? The primary care trust (PCT) was selected for Whole System Informing Self-management Engagement (WISE) implementation because of previous support for self-management initiatives and its research-friendly identity

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Summary

Introduction

Implementing self-management approaches have the potential to improve health outcomes and reduce the fiscal burden on health care systems [1]. Current adoption of self-management support (SMS) has been mainly directed at patient self-skills training and behaviour change with little consideration of the concurrent activities required of multiple partners in whole health system implementation to ensure adoption and integration into long-term condition management [2]. The components of the Whole System Informing Self-management Engagement (WISE) approach to SMS had been firmly established but not implemented in a primary care context. Implementation of long-term condition management interventions rests on the notion of whole systems re-design, where incorporating wider elements of health care systems are integral to embedding effective and integrated solutions. A randomised controlled trial of a SMS intervention (WISE—Whole System Informing Self-management Engagement) implemented in primary care showed no effect on patient-level outcomes. Normalisation Process Theory (NPT) provided a sensitising background and analytical framework

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