Abstract

BackgroundPatient Reported Experience Measures are promoted to be used as an integrated measurement approach in which outcomes are used to improve individual care (micro level), organisational quality (meso level) and external justification (macro level). However, a deeper understanding of implementation issues of these measures is necessary. The narrative Patient Reported Experience Measure “Dit vind ik ervan!” (English “How I feel about it!”) is used in the Dutch disability care sector, but insight into its’ current use is lacking. We aimed to provide insight into experiences with the implementation and current ways of working with “Dit vind ik ervan!” as an integrated measurement strategy.A descriptive qualitative study was done at a disability care organisation. Data were collected by nine documentations, seven observations, 11 interviews and three focus groups. We applied deductive content analysis using the Consolidated Framework for Implementation Research as a framework.ResultsOur analysis revealed facilitators and barriers for the implementation of “Dit vind ik ervan!”. We found most barriers at the micro level. Professionals and clients appreciated the measure’s narrative approach, but struggled to perform it with communication vulnerable clients. Some clients, professionals and team leaders were unfamiliar with the measure’s aim and benefit. On the meso level, implementation was done top-down, and the management’s vision using the measure as an integrated measurement approach was insufficiently shared throughout the organisation.ConclusionsOur study shows that Patient Reported Experience Measures have the potential to be used as an integrated measurement strategy. Yet, we found barriers at the micro level, which might have influenced using the measurement outcomes at the meso and macro level. Tailored implementation strategies, mostly focusing on designing and preparing the implementation on the micro level, need to be developed in co-creation with all stakeholders.

Highlights

  • Patient Reported Experience Measures are promoted to be used as an integrated measurement approach in which outcomes are used to improve individual care, organisational quality and external justification

  • This study aimed at providing greater insights into experiences with the implementation and current ways of working with the Patient Reported Experience Measure (PREM) “Dit vind ik ervan!” as an integrated measurement strategy in routine care by answering the following research question:

  • We investigated experiences with regard to using a PREM as an integrated measurement approach within Stichting Gehandicaptenzorg Limburg (SGL) by incorporating key-stakeholders involved in the process of working with the PREM on multiple levels

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Summary

Introduction

Patient Reported Experience Measures are promoted to be used as an integrated measurement approach in which outcomes are used to improve individual care (micro level), organisational quality (meso level) and external justification (macro level). The narrative Patient Reported Experience Measure “Dit vind ik ervan!” (English “How I feel about it!”) is used in the Dutch disability care sector, but insight into its’ current use is lacking. The Dutch Association for People with Disabilities promotes the use of PREMs and judged a selected number of PREMs as suitable for the Dutch disability sector [27] One of those PREMs is called “Dit vind ik ervan!” (English “How I feel about it!”), which was especially developed for people with intellectual, developmental and acquired disabilities [11, 28]. Clients can score topics from bad to good and indicate whether the topic needs change

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