Abstract

Background: Perinatal death (PD) is a painful experience, with physical, psychological and social consequences in families. Each year, there are 2.7 million perinatal deaths in the world and about 2000 in Spain. The aim of this study was to explore, describe and understand the impact of perinatal death on parents’ social and family life. Methods: A qualitative study based on Gadamer’s hermeneutic phenomenology was used. In-depth interviews were conducted with 13 mothers and eight fathers who had suffered a perinatal death. Inductive analysis was used to find themes based on the data. Results: Seven sub-themes emerged, and they were grouped into two main themes: 1) perinatal death affects family dynamics, and 2) the social environment of the parents is severely affected after perinatal death. Conclusions: PD impacts the family dynamics of the parents and their family, social and work environments. Parents perceive that society trivializes their loss and disallows or delegitimizes their grief. Implications: Social care, health and education providers should pay attention to all family members who have suffered a PD. The recognition of the loss within the social and family environment would help the families to cope with their grief.

Highlights

  • Perinatal death (PD) occurs between the 22nd full week of gestation and 7 days after birth [1], and it has decreased globally [2], about 2% of pregnancies end in stillbirth [3]

  • A qualitative study was designed based on the hermeneutical phenomenology of Gadamer, which highlights the dialogic nature of understanding

  • The data analysis led to 36 units of meaning that were grouped into seven sub-themes. These sub-themes were grouped into two main themes that helped us to understand how parents who have suffered a PD perceive the impact it has on their social and family environment (Table 4)

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Summary

Introduction

Perinatal death (PD) occurs between the 22nd full week of gestation (or when the baby weighs500 g) and 7 days after birth [1], and it has decreased globally [2], about 2% of pregnancies end in stillbirth [3]. Perinatal death (PD) is a painful experience, with physical, psychological and social consequences in families. There are 2.7 million perinatal deaths in the world and about 2000 in Spain. The aim of this study was to explore, describe and understand the impact of perinatal death on parents’ social and family life. Results: Seven sub-themes emerged, and they were grouped into two main themes: 1) perinatal death affects family dynamics, and 2) the social environment of the parents is severely affected after perinatal death. Conclusions: PD impacts the family dynamics of the parents and their family, social and work environments. The recognition of the loss within the social and family environment would help the families to cope with their grief

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