Abstract
Background: Thalassemia is the most common genetic disorder in Egypt, It is measured a fetal disease if proper chelation treatment is not established. The introduction of chelating agents able to removing extreme iron from the body has noticeably increased life expectancy time and improving the in general quality of life. the study aimed to identify the impact of an educational program about iron chelation therapy on the QoL for thalassemic children.Quasi-experimental research design was used , a convenient sample of 50 thalassemic children on chelation therapy, and their family caregiver at the pediatrics outpatient department at the Health Insurance Agency Hospital in Damietta city for 12 months from April 2015 to April 2016. The tools of data collection were an interview questionnaire for knowledge, and the pediatric QoL tool, child and parent versions. The resultsrevealed that there were statistically significant improvement of children's knowledge with P-value = 0.001. Subsequently, statistically significant improvement of children's quality of life at follow up compared with pre-intervention phase. The study recommended repetition of this research on large sample and in various places in Egypt and make the children with Thalassemia the focus of the health care team through designing several educational program and update posters and procures that improving their knowledge and then and then release improve in the quality of life of thalassemic children.
Highlights
The quality of life (QOL) should be consider as an vital key of efficient treatment.As judgment of QOL differ from other form of therapeutic estimation which it causes on the person own aspect s of their comfort and evaluates another aspects of life, give a more view of comfort, latest only some studies mentioned that the health related quality of life of thalassemic children with smoothing iron overburden optimal chelation therapy decrease iron overburden complication and provide a best quality of lif (Dahlui et al., 2010).The intensive iron chelation therapy considerably increment the lifetime and get better the QOL for Thalassemiac children
As judgment of QOL differ from other form of therapeutic estimation which it causes on the person own aspect s of their comfort and evaluates another aspects of life, give a more view of comfort, latest only some studies mentioned that the health related quality of life of thalassemic children with smoothing iron overburden optimal chelation therapy decrease iron overburden complication and provide a best quality of lif (Dahlui et al, 2010)
As to improve theQOL, the thalassemic children, they should know the importance of chelation therapy and gaining enough knowledge about it
Summary
The intensive iron chelation therapy considerably increment the lifetime and get better the QOL for Thalassemiac children. This is by dropping the amount of stored iron and preventing or reversing the toxic effect of this heavy metallic element , or accelerating the removal of the metal from the body (Brittenham et al, 2005; McCance and Grey, 2010). The study recommended repetition of this research on large sample and in various places in Egypt and make the children with Thalassemia the focus of the health care team through designing several educational program and update posters and procures that improving their knowledge and and release improve in the quality of life of thalassemic children
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