Impact of COVID-19 on the burden of care of families of people with intellectual and developmental disabilities.

Abstract

This study analysed the impact that COVID-19 and the response measures implemented by the Spanish Government have had on families of individuals with intellectual and developmental disabilities. Data on 323 family members (M=52.3 years old; SD=10.5) were collected through an online survey, which was focused on analysing difficulties experienced and service provision during lockdown. Many families (66.3%) have seen their level of stress increased during lockdown because of, among other reasons, a greater burden of care. Difficulties were associated with the closure and changes in disability-related services. Families of people with extensive support needs have generally experienced greater difficulties. Support services should have been considered essential services during lockdown. The failure to receive support has resulted in excessive burden on families, who had to assume a multitude of roles to support their family member with intellectual and developmental disability.