Abstract

Families who have children with Acute Lymphoblastic Leukemia (ALL) are at high risk of experiencing stress. Stress on the family can cause the formation of negative communication in children so that families tend to spend more time in dealing with negative emotions through negative actions. This study aimed to analyze the correlation between stress, anxiety, and depression in caregiver with pediatric ALL outcome. A cross sectional study was conducted on children with ALL and their caregivers at the Pediatric Ward, Dr. Soetomo Hospital, Surabaya. Beck Anxiety Inventory (BAI) and Beck Depression Inventory (BDI) questionnaire were used to measure anxiety and depression in caregivers. Previous stressful experiences in children and caregivers were assessed by The Perceived Stress Scale (PSS), Children quality of life was assessed by pediatric quality of life inventory (PedsQL™) questionnaire. Pearson and Spearman correlation strength test was performed for the statistical analysis. There is no significant correlation between stress level of caregivers with the quality of life of children with ALL (P > 0.05). There is negative correlation between the level of anxiety and depression in caregivers with the quality of life of children (P < 0.05). There is negative correlation between children stress level with the quality of life of children (P < 0.05). The psychological condition of the caregiver affects the quality of life of children. The higher the level of anxiety and depression in caregivers, the lower the quality of life of children.<br />.

Highlights

  • Interaction between children with Acute Lymphoblastic Leukemia (ALL) and their caregiver is a peculiar phenomenon

  • Previous stressful experiences in children and caregivers were assessed by The Perceived Stress Scale (PSS), Children quality of life was assessed by pediatric quality of life inventory (PedsQLTM) questionnaire

  • This study aims to analyze the relationship of stress, anxiety, and depression in caregivers with quality of life of children with ALL

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Summary

Introduction

Interaction between children with ALL and their caregiver is a peculiar phenomenon. Families who have children with cancer are at high risk of experiencing psychological stress (Patiño-Fernández et al, 2008). Studies have shown that in highly severe or chronic disease, children caregiver tends to have poorer quality of life and higher stress level (Litzelman et al, 2011; Feeley et al, 2014; Nieuwesteeg et al, 2016). Psychological stress on the family can cause the formation of negative communication in children so that families tend to spend more time dealing with negative emotions through negative actions (Murphy et al, 2017). Results: There is no significant correlation between stress level of caregivers with the quality of life of children with ALL (P > 0.05). There is negative correlation between the level of anxiety and depression in caregivers with the quality of life of children (P < 0.05). The higher the level of anxiety and depression in caregivers, the lower the quality of life of children

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