Impact of a mental health patient portal on patients’ views of compassion: a mixed-methods study

Abstract

BackgroundCompassion is central to achieving positive clinical outcomes, commonly studied as a concept that enhances therapeutic alliance between patients and clinicians. Within mental health care, compassion may be enhanced by a patient portal, a digital platform where information is exchanged between clinicians and patients. The portal is viewed as a compassion-oriented technology, as it may positively influence safety, disease management, and patient engagement. As portals have limited implementation in mental health care, it is imperative to research the impact of portal use on patient’s perspectives of compassion expressed by clinicians.MethodsWe conducted a convergent mixed methods study to assess and understand the impact of portal use on patients’ experience of compassion in mental health care settings. The quantitative strand encompassed a self-administered survey consisting of a validated compassion scale at the time of enrolment in the portal and after both three and 6 months of portal use. The qualitative strand consisted of semi-structured interviews with patients after the three-month mark of portal use. Data collection and analysis of both strands happened independently, then these two complementary findings were merged narratively.ResultsA total of 113 patient surveys and ten interviews were included in analysis. The univariate model with time as the only independent variable did not show significant differences in the total compassion scores across the three time points, F (2, 135) = 0.36 p = 0.7. The model was then adjusted for sex, age, and diagnosis and did not show significant changes in the total compassion scores, F (2, 135) = 0.42 p = 0.66. Interview findings identified both positive and negative influences of portal use in patients’ perception of compassion. Some participants described compassion as something personal, not associated with the portal use. However, some participants reported that portals facilitated treatment experiences, being reflective of compassionate care.ConclusionsPatient portals in mental health care may allow for timely exchange of information and create a space outside appointments to strengthen relationships between clinicians and patients, improving compassionate delivery of care. Further research can help better understand how portals can contribute to digital compassion as technological advancements continue to be integrated into mental health care contexts.