Abstract

BackgroundIn the UK, Gypsy, Roma and Traveller (GRT) communities are generally considered to be at risk of low or variable immunisation uptake. Many strategies to increase uptake for the general population are relevant for GRT communities, however additional approaches may also be required, and importantly one cannot assume that “one size fits all”. Robust methods are needed to identify content and methods of delivery that are likely to be acceptable, feasible, effective and cost effective. In this paper, we describe the approach taken to identify potential interventions to increase uptake of immunisations in six GRT communities in four UK cities; and present the list of prioritised interventions that emerged.MethodsThis work was conducted in three stages: (1) a modified intervention mapping process to identify ideas for potential interventions; (2) a two-step prioritisation activity at workshops with 51 GRTs and 25 Service Providers to agree a prioritised list of potentially feasible and acceptable interventions for each community; (3) cross-community synthesis to produce a final list of interventions. The theoretical framework underpinning the study was the Social Ecological Model.ResultsFive priority interventions were agreed across communities and Service Providers to improve the uptake of immunisation amongst GRTs who are housed or settled on an authorised site. These interventions are all at the Institutional (e.g. cultural competence training) and Policy (e.g. protected funding) levels of the Social Ecological Model.ConclusionsThe “upstream” nature of the five interventions reinforces the key role of GP practices, frontline workers and wider NHS systems on improving immunisation uptake. All five interventions have potentially broader applicability than GRTs. We believe that their impact would be enhanced if delivered as a combined package. The robust intervention development and co-production methods described could usefully be applied to other communities where poor uptake of immunisation is a concern.Study registrationCurrent Controlled Trials ISRCTN20019630, Date of registration 01-08-2013, Prospectively registered.

Highlights

  • In the United Kingdom (UK), Gypsy, Roma and Traveller (GRT) communities are generally considered to be at risk of low or variable immunisation uptake

  • This is based on data demonstrating low uptake of preventive health services [1,2,3,4], the findings of a small number of local studies assessing immunisation take up using self-report or National Health Service (NHS) records (e.g. [5, 6]), and publicised outbreaks of measles and whooping cough [6, 7]

  • Five interventions emerged as most consistently supported across GRT communities and/or their Service Providers to improve uptake of immunisation among GRT who are housed or settled on an authorised site

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Summary

Introduction

In the UK, Gypsy, Roma and Traveller (GRT) communities are generally considered to be at risk of low or variable immunisation uptake. Some differences exist between communities, our research [12,13,14] and other studies with diverse GRT communities [1,2,3,4, 15, 16] report that these groups encounter challenges accessing health services, including immunisation. These are often related to socio-economic and socio-cultural barriers for example, poverty, low literacy, discrimination leading to a lack of trust in health professionals, irregular school attendance, poor/changing housing conditions and language. Studies exploring GRT views on immunisation report mixed acceptance [12,13,14,15,16,17,18], resistance to immunisations is associated with concerns about the potential side effects and/or a lack of belief in their value

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