Identifying Barriers to Advocacy Among Patients With Lung Cancer: The Role of Stigma-Related Interpersonal Constraint.

Abstract

To examine whether aspects of disease-specific stigma are barriers to advocacy among individuals with lung cancer. 266 patients with lung cancer treated at two National Cancer Institute-designated comprehensive cancer centers in the United States. Patients completed a cross-sectional survey. Demographic, clinical, and stigma-related correlates of advocacy were also explored. In multivariable analyses, lower levels of patient advocacy were reported by older patients and those with higher levels of constrained disclosure (i.e., avoidance of or discomfort in disclosing one's lung cancer status). Avoidance of discussing lung cancer (constrained disclosure) may be a barrier to patient involvement in advocacy. Additional research is needed to examine this relationship, reduce stigma, and promote inclusivity for individuals with lung cancer.