‘I want us to divorce so that I will stay alone and be free’: the social experiences of women living with advanced cervical cancer in Ghana

Abstract

Background/Aim Cervical cancer is the second most common form of cancer and second leading cause of mortality for women in Ghana, with most being diagnosed at the advanced stage. A late diagnosis affects women's social wellbeing. However, there is a dearth of information on the social implications of advanced cervical cancer among women in Ghana. This study's aim was to explore these social experiences. Methods A qualitative exploratory descriptive approach was used. Purposive sampling was used to recruit 15 women aged 33−67 years old who had been diagnosed with advanced cervical cancer. Data were collected through face-to-face interviews using a semi-structured interview guide. Data were analysed using content analysis. Results Four themes emerged: impaired relationships, social isolation, economic burden and support networks. Participants found that their diagnosis impacted their relationships with their partners and their family. They also reported isolating themselves from social events, either as a result of others' attitudes once they learnt of the diagnosis, or because of the symptoms of the disease and side effects of treatment that affected their physical appearance. The cost of treatment and living expenses, as well as the impact on women's ability to work, had considerable effects on the participants' lives. Many participants had the support of their spouse, family and place of work, although some reported a lack of support from their partner or coworkers. Conclusions The findings highlight the need to formulate policies to support women diagnosed with advanced cervical cancer to improve social wellbeing. A public awareness campaign is needed to educate the public to encourage acceptance of women living with advanced cervical cancer.