'I Do Not Want to Share My Pain With Anyone'-Coping With the Invisible Burden. A Qualitative Description of the Lived Experiences of Individuals With Rotator Cuff Related Shoulder Pain in an Indian Setting.

Abstract

Rotator cuff related shoulder pain (RCRSP) significantly impacts the physical, and psychosocial well-being of an individual. While studies of lived experiences with shoulder pain were conducted in Western (developed countries) contexts, understanding such experiences in low-to middle-income countries such as India remains limited. This study explores and describes the lived experiences of individuals with RCRSP in Indian settings. A phenomenological approach explored the lived experience of individuals with RCRSP in South India. Ten participants with RCRSP (7 men and 3 women) with mean duration of symptoms ranging between 3 and 24months were interviewed individually using a semi-structured guide with inductive thematic analysis. Participants also completed the Disabilities of the Shoulder Arm and Hand (DASH) questionnaire for upper limb function. Interviews were audio recorded and transcribed verbatim. Three themes that emerged from the interviews were 'The multidimensional burden of RCRSP', 'Navigating the treatment journey between trust and uncertainties', and 'Pathway of healing: Coping with the invisible burden'. Shoulder pain significantly impacted activities, family, and volunteering roles. The majority of the suffering and expression of pain were hidden and influenced by cultural and societal norms. There was a strong belief in the body's ability to heal and acceptance of Eastern and Western treatment approaches. The findings highlight the need for a holistic management strategy that effectively addresses physical impairments, psychosocial support, and cultural beliefs to manage RCRSP in such settings.