Hyper Immunoglobulin D syndrome (HIDS): understanding what it is like to live with this rare condition

P Dandekar,F Bourhis,J Gregson,R Campbell

doi:10.1186/1546-0096-13-s1-p24

P Dandekar, F Bourhis + Show 2 more

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https://doi.org/10.1186/1546-0096-13-s1-p24

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Journal: Pediatric Rheumatology	Publication Date: Sep 28, 2015
Citations: 1	License type: cc-by

Affiliation: Novartis (Switzerland)

Abstract

Hyper Immunoglobulin D syndrome (HIDS) is a genetic disorder characterized by recurrent attacks of fever and inflammatory symptoms and is most common in those of French or Dutch descent.[1,2]

Highlights

Hyper Immunoglobulin D syndrome (HIDS) is a genetic disorder characterized by recurrent attacks of fever and inflammatory symptoms and is most common in those of French or Dutch descent.[1,2]
To understand the impact of HIDS on the lives of patients/caregivers, to describe patient’s journey from first symptoms and to learn what patients hope to emerge in terms of future therapy, support and information
Patients and methods Fifteen patients with HIDS were recruited across US, Europe and Australia

Summary

Introduction

Hyper Immunoglobulin D syndrome (HIDS) is a genetic disorder characterized by recurrent attacks of fever and inflammatory symptoms and is most common in those of French or Dutch descent.[1,2]. Introduction Hyper Immunoglobulin D syndrome (HIDS) is a genetic disorder characterized by recurrent attacks of fever and inflammatory symptoms and is most common in those of French or Dutch descent.[1,2] Objectives To understand the impact of HIDS on the lives of patients/caregivers, to describe patient’s journey from first symptoms and to learn what patients hope to emerge in terms of future therapy, support and information. Patients and methods Fifteen patients with HIDS were recruited across US, Europe and Australia.

Objectives

Results

Conclusion