Abstract

Genetic testing has become more efficient and cost-effective, but the cost of genetic services remains a barrier for many patients and contributes to access disparities. In the United States, biomedical manufacturers and charitable patient advocacy programs administer patient assistance programs (PAPs) to help patients pay for higher-priced medical care, including genetic tests. However, there is limited research on the effectiveness of PAPs in reaching patients most in need of financial assistance. This study is among the first to examine how individuals without adequate insurance coverage or the financial capability to pay for testing navigate are able to access PAPs.

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