Abstract
To investigate the decision-making processes applied by people with dementia and family carers participating in using health economic approaches to value dementia-specific quality of life states. People with dementia (n=13) and family carers (n=14) participated in valuing quality of life states using two health economic approaches: Discrete Choice Experiment (DCE) and Best Worst Scaling (BWS). Participants were encouraged to explain their reasoning using a "Think Aloud" approach. People with dementia and family carers adopted a range of decision-making strategies including "anchoring" the presented states against current quality of life, or simplifying the decision-making by focusing on the sub-set of attributes deemed most important. Overall, there was strong evidence of task engagement for BWS and DCE. Health economic valuation approaches can be successfully applied with people with dementia and family carers. These data can inform the assessment of benefits from their perspectives for incorporation within economic evaluation.
Highlights
The overall aim of economic evaluation is to provide a mechanism to facilitate efficient and equitable decisions about the allocation of scarce resources by comparing the
Five (38%) participants with dementia reported that they found the DCETTO task difficult to complete, and six (46%) indicated that they found the Best Worst Scaling (BWS) task difficult to complete
Our findings suggest that those scoring 2 or lower than 2 on the GPCOG may find both DCETTO and BWS tasks significantly more challenging than those scoring 3 or higher, though some usable data were elicited
Summary
To investigate the decision-m aking processes applied by people with dementia and family carers participating in using health economic approaches to value dementia-s pecific quality of life states. Methods: People with dementia (n = 13) and family carers (n = 14) participated in valuing quality of life states using two health economic approaches: Discrete Choice Experiment (DCE) and Best Worst Scaling (BWS). Results: People with dementia and family carers adopted a range of decision-m aking strategies including “anchoring” the presented states against current quality of life, or simplifying the decision-m aking by focusing on the sub-s et of attributes deemed most important. Conclusions: Health economic valuation approaches can be successfully applied with people with dementia and family carers. These data can inform the assessment of benefits from their perspectives for incorporation within economic evaluation. KEYWORDS dementia, economic evaluation, health status, patient preference, quality-adjusted life years
Sign-in/Register to view highlights & summary Sign-in/Register to access full text options 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
