Abstract
The study was funded by a grant from Dimbleby Cancer Care.IntroductionExtensive research exists on how bad news is broken by physicians to patients, but little is known about the subsequent stage: when patients face the difficult task of sharing this news with family members and friends.Aim(s)To understand the experience of sharing news of a lung cancer diagnosis with wider family members and friends to inform a supportive intervention to prepare patients for sharing bad news.MethodsQualitative interviews with 20 patients with lung cancer and 17 family members/friends present at diagnosis-giving to explore experiences of receiving their diagnosis and how news was shared with wider family/friends.Thematic framework analysis was conducted.ResultsThree key findings: (1) sharing bad news happened over time, at any point along the illness trajectory—it was a process, not a discrete event;(2) timing of sharing bad news was very individual—people needed to feel ready to share their diagnosis and had to prepare themselves to do so;(3) regardless of when news was shared it had consequences in terms of the reactions of those told, which required managing. Illustrative timelines of processes of early and later sharing of bad news will be presented.Conclusion(s)Understanding sharing bad news as a process which happens over time is a significant finding for design and delivery of a supportive intervention. Preparing patients to share news of a lung cancer diagnosis, which often presents at an advanced stage, is highly relevant for future palliative care delivery.
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