Abstract

BackgroundThe future of health care services in the European Union faces the triple challenges of aging, fiscal restriction, and inclusion. Co-production offers ways to manage informal care resources to help them cater for the growing needs of elderly people. Social media (SM) is seen as a critical enabler for co-production.ObjectiveThe objective of this study was to investigate how SM—private Facebook groups, forums, Twitter, and blogging—acts as an enabler of co-production in health and care by facilitating its four underlying principles: equality, diversity, accessibility, and reciprocity.MethodsWe used normalization process theory as our theoretical framework to design this study. We conducted a qualitative study and collected data through 20 semistructured interviews and observation of the activities of 10 online groups and individuals. We then used thematic analysis and drew on principles of co-production (equality, diversity, accessibility, and reciprocity) as a deductive coding framework to analyze our findings.ResultsOur findings point to distinct patterns of feature use by different people involved in care of elderly people. This diversity makes possible the principles of co-production by offering equality among users, enabling diversity of use, making experiences accessible, and encouraging reciprocity in the sharing of knowledge and mutual support. We also identified that explication of common resources may lead to new forms of competition and conflicts. These conflicts require better management to enhance the coordination of the common pool of resources.ConclusionsSM uses afford new forms of organizing and collective engagement between patients, carers, and professionals, which leads to change in health and care communication and coordination.

Highlights

  • Valuing Carers 2015 – the rising value of carers’ support is the third in a series of research reports looking at the value to the UK economy of the support provided by unpaid carers

  • This report is authored by Professor Sue Yeandle (University of Sheffield) and Dr Lisa Buckner (University of Leeds) and published by Carers UK

  • Professor Sue Yeandle is the Director of CIRCLE, a research centre formerly based at the University of Leeds and based at the University of Sheffield which carries out research in three key areas: care, labour and equalities

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Summary

Key findings:

The economic value of the contribution made by carers in the UK is £132 billion per year, almost double its value in 2001 (£68 billion). This research is the latest in a series of reports setting out in stark financial terms how the value of unpaid care has increased in response to an increasing demand for care and spending pressure on already stretched NHS and social care budgets. More of those born with disabilities are surviving into adulthood and later life, and many are surviving serious illness like cancer or stroke. This report concludes with five key recommendations on how caring roles can be sustained and supported

Findings and methodology
Urgently address the underfunding of social care
Improve financial support for carers
Promote a carer-friendly NHS
Introduce a right to paid care leave
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