Hospice Care for Children

Abstract

FOREWORD BY ARCHBISHOP DESMOND MPILO TUTU, ARCHBISHOP OF CAPE TOWN, SOUTH AFRICA ANGLICAN CHURCH OF SOUTHERN AFRICA INTRODUCTION PART I: ISSUES IN CLINICAL MANAGEMENT 1. Children's Understanding of Death 2. Pain and Symptom Management 3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence: Responding to the Storm 4. The Spectrum of Palliative Nurse Care of Children and Their Families Across Settings 5. Neonatal Death 6. Care for the Child with HIV Infection and AIDS PART II: SUPPORT SYSTEMS 7. Caring for Bereaved Parents 8. After a Child Dies: Helping the Siblings 9. Spiritual Care of Children and Parents 10. Staff Support in Pediatric Hospice Care 11. Volunteers in Pediatric Palliative Care Programs: Changing Medical Environment 12. The Essential Role of School Bereavement Programs 13. Therapeutic Play and Creative Arts: Helping Children Cope with Illness, Death and Grief 14. The Primary Care Physician's Role in Hospice Care PART III: DIFFERNET CONTEXTS, DIFFERENT LESSONS 15. Children's Hospice and Palliative Care Worldwide 16. Pediatrics and Palliative Care: Learning from One Another 17. Children's Hospice International Program for All-Inclusive Care for Children and Their Families 18. Palliative Care Across a Pediatric Post Acute Healthcare System 19. Ethical Decision Making at the End of Life 20. Incorporating Children in an Adult Hospice Program 21. Death-Related Literature for Children and Adolescents: Selected, Annotated, and with Guidelines and Resources for Adults