Abstract

Few evidence-based interventions exist to support parenting and child mental health during the process of caregiver HIV status disclosure in sub-Saharan Africa. A secondary analysis of a randomized-controlled trial was conducted to examine the role of family-based intervention versus usual social work care (care as usual) in supporting HIV status disclosure within families in Rwanda. Approximately 40 households were randomized to family-based intervention and 40 households to care as usual. Parenting, family unity, and child mental health during the process of disclosure were studied using quantitative and qualitative research methods. Many of the families had at least one caregiver who had not disclosed their HIV status at baseline. Immediately post-intervention, children reported lower parenting and family unity scores compared with those in the usual-care group. These changes resolved at 3-month follow-up. Qualitative reports from clinical counselor intervention sessions described supported parenting during disclosure. Overall findings suggest adjustments in parenting, family unity, and trust surrounding the disclosure process. Family-based intervention may support parenting and promote child mental health during adjustment to caregiver HIV status disclosure. Further investigation is required to examine the role of family-based intervention in supporting parenting and promoting child mental health in HIV status disclosure.

Highlights

  • There is a dearth of literature examining the effects of caregiver HIV status disclosure within families in sub-Saharan Africa [1]

  • Research in South Africa has demonstrated the feasibility of family-based intervention to support caregiver HIV status disclosure to children [11]

  • At the end of the FSI-HIV intervention, family unity and child-reported parenting appeared to decrease in intervention families, with recovery and signs of resolution after the followup period (Figures 1 and 2)

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Summary

Introduction

There is a dearth of literature examining the effects of caregiver HIV status disclosure within families in sub-Saharan Africa [1]. There is limited examination of interventions that support parenting and child mental health during this process [2,3,4]. HIV Status Disclosure through Family-Intervention family-based intervention may support parenting and promote child mental health during the process of caregiver HIV status disclosure to children [9, 10]. Research in South Africa has demonstrated the feasibility of family-based intervention to support caregiver HIV status disclosure to children [11]. Quantitative and qualitative analysis of data from an 80-family randomized-controlled trial of FSI-HIV versus usual-care social work was undertaken to examine supported caregiver HIV status disclosure within families in Rwanda

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