Abstract

<p>This study aims to investigate: 1) the views of the <em>Pucang</em> community about albinism, 2) the inheritance pattern of albinism, 3) preventive efforts to prevent the spread of albinism, and 4) the Hinduism theology related to albinism among the <em>Pucang</em> community. The methods used in data collection were interviews, observation, documentation, and literature review. The collected data was analyzed descriptively. There are 9 cases of people with albinism in <em>Desa Adat Pucang</em>. Albino sufferers were born from parents who are close relatives. The people of <em>Desa Adat Pucang</em> believe that albino sufferers were descended from <em>Bethara Pancering Akasa</em> and assume that albino sufferers might be sacrificed as <em>caru</em>(ceremonial offering) during the <em>Panca Bali Krama</em> and <em>Eka Dasa Ludra</em> ceremonies in Besakih Temple. Preventive efforts that can be done to decrease the number of albinism cases are including: 1) avoiding close-family marriages, 2) making ‘<em>awig-awig’ </em>(rules and regulations) which contains an appeal that close-family marriages are unfortunate and, 3) genetic counseling for couples who will be married and have been married , and 4) expanding the social interaction and education of <em>Desa Adat Pucang</em> in order to broaden the insights about albinism.</p>

Highlights

  • The phenomena of Albinism in some regions are characterized by a variety of community beliefs, which lead to certain behaviors in interacting with Albino sufferers in their area

  • This study aims to investigate: 1) the views of the Pucang community about albinism, 2) the inheritance pattern of albinism, 3) preventive efforts to prevent the spread of albinism, and 4) the Hinduism theology related to albinism among the Pucang community

  • Preventive efforts that can be done to decrease the number of albinism cases are including: 1) avoiding close-family marriages, 2) making ‘awig-awig’ which contains an appeal that closefamily marriages are unfortunate and, 3) genetic counseling for couples who will be married and have been married, and 4) expanding the social interaction and education of Desa Adat Pucang in order to broaden the insights about albinism

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Summary

Introduction

The phenomena of Albinism in some regions are characterized by a variety of community beliefs, which lead to certain behaviors in interacting with Albino sufferers in their area. Desa Adat Pucang, a village in Kecamatan Kubu, Kabupaten Karangasem, is one of the areas in Bali which has inherrited stereotype towards albino people. If there is a big ceremony held at Besakih Temple, albino sufferers are believed to be the important part of the ceremony in thier previous live, which were used as caru (offering) for ceremonies such as: Panca Wali Krama and Eka Dasa Ludra. This is only the assumption of the local community in Desa Adat Pucang.

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