Abstract
People with hemophilia usually have negative joint consequences due to their illness. Evidence suggests that exercise and therapeutic education bring some benefits. An important factor that affects health interventions was the experience and degree of satisfaction. Thus, it is relevant to analyze qualitative and quantitative data to obtain a complete view of the patient’s experience. As a result, a concurrent nested mixed method with quantitative predominance study design was carried out. Nine people with hemophilia of Hemoaralar with a homogeneous environment participated in this study. The items evaluated were the level of satisfaction through the GCPC-UN-ESU survey and the experience with healthcare interventions through a focus group. A high level of satisfaction was obtained, but some divergences between quantitative and qualitative data were found. Further research about physical therapy and this type of intervention in people with hemophilia should be considered to better address the impact of living with the disease.
Highlights
Hemophilia is characterized by the congenital deficiency of blood clotting factors, as the coagulation factor is not synthesized by the body
A concurrent nested mixed method with quantitative predominance study design was chosen [16]. It was conducted in accordance with The Declaration of Helsinki and following the “Mixed Method Article Report Standards” (MMARS) [17]
It should be noted that participants detected a lack of knowledge about and interest in physical therapy treatments in their disease
Summary
Hemophilia is characterized by the congenital deficiency of blood clotting factors, as the coagulation factor is not synthesized by the body. It is an X-linked recessive nondominant hereditary pathology. Depending on the missing factor, there are two types of hemophilia: Hemophilia A, corresponding to factor VIII deficiency, and hemophilia B, corresponding to factor IX deficiency (called Christmas disease). Within this classification, it is subdivided according to the plasma concentration, with three categories of hemophilia: mild (5–40%), moderate (1–5%) and severe (
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