Abstract

BackgroundPeople with dementia living in care homes often experience clinically significant agitation; however, little is known about its economic impact.ObjectiveTo calculate the cost of agitation in people with dementia living in care homes.MethodsWe used the baseline data from 1,424 residents with dementia living in care homes (part of Managing Agitation and Raising QUality of lifE in dementia (MARQUE) study) that had Cohen-Mansfield Agitation Inventory (CMAI) scores recorded. We investigated the relationship between residents’ health and social care costs and severity of agitation based on the CMAI total score. In addition, we assessed resource utilisation and compared costs of residents with and without clinically significant symptoms of agitation using the CMAI over and above the cost of the care home.ResultsAgitation defined by the CMAI was a significant predictor of costs. On average, a one-point increase in the CMAI will lead to a 0.5 percentage points (cost ratio 1.005, 95%CI 1.001 to 1.010) increase in the annual costs. The excess annual cost associated with agitation per resident with dementia was £1,125.35. This suggests that, on average, agitation accounts for 44% of the annual health and social care costs of dementia in people living in care homes.ConclusionAgitation in people with dementia living in care homes contributes significantly to the overall costs increasing as the level of agitation increases. Residents with the highest level of agitation cost nearly twice as much as those with the lowest levels of agitation, suggesting that effective strategies to reduce agitation are likely to be cost-effective in this setting.

Highlights

  • It is estimated that 46.8 million people worldwide were living with dementia in 2015 with a total cost to society of US$818 billion

  • This suggests that, on average, agitation accounts for 44% of the annual health and social care costs of dementia in people living in care homes

  • Agitation in people with dementia living in care homes contributes significantly to the overall costs increasing as the level of agitation increases

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Summary

Introduction

It is estimated that 46.8 million people worldwide were living with dementia in 2015 with a total cost to society of US$818 billion. Given current population trends and that prevalence of dementia increases with age, the number of people with dementia worldwide is projected to triple to 131.5 million in 2050 [1]. In the UK, the estimated number of people living with dementia was over 800,000 in 2014 with a total cost to society of £26.3 billion. Dementia is characterised by progressive cognitive disability, a high prevalence of neuropsychiatric symptoms such as agitation, depression and psychosis, reduced quality of life, increased caregiver burden and costs of care [3, 4]. People with dementia living in care homes often experience clinically significant agitation; little is known about its economic impact

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