Abstract

AimThe aim of this study was to investigate changes in patients' self‐management and health status five years after nurse‐led patient education.DesignA longitudinal study.MethodsWe collected self‐reported data on physical function, pain, tiredness, disease activity, psychological status, patient activation and self‐efficacy from a sample of Norwegian‐speaking adults with inflammatory arthritis that had participated in a randomised controlled study investigating the effects of nurse‐led patient education. Changes and associations in patients' health status and self‐management were analysed with paired sample t tests and multivariable linear regression analyses, respectively.ResultsExcept from a small deterioration in patients' physical function, there were no changes in patients' health status 5 years after the nurse‐led patient education. Patients' self‐management skills were improved after 5 years. Self‐efficacy was positively associated with female gender, patient activation, less tiredness and less psychological distress.

Highlights

  • Chronic inflammatory arthritis (IA) including rheumatoid arthritis (RA), psoriatic arthritis (PsA) or unspecified polyarthritis (UA) are all chronic diseases with various degree of symptoms like joint in‐ flammation, joint tenderness, stiffness, pain and fatigue (Ledingham, Snowden, & Ide, 2017)

  • The aim of this study was to investigate changes in self‐management and health status among patients with IA that had participated in an RCT on nurse‐led patient education 5 years earlier; secondly, to study associations between disease‐related factors, health status, demo‐ graphics and self‐efficacy in the same sample of patients with IA

  • The data consisted of demographic information, disease character‐ istics and domains that patient education may influence (Prothero et al, 2018) such as physical function, disease symptoms, psychological status and self‐management

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Summary

Introduction

Chronic inflammatory arthritis (IA) including rheumatoid arthritis (RA), psoriatic arthritis (PsA) or unspecified polyarthritis (UA) are all chronic diseases with various degree of symptoms like joint in‐ flammation, joint tenderness, stiffness, pain and fatigue (Ledingham, Snowden, & Ide, 2017). The overarching principle in the field of rheumatology is that patient education should enable people to manage their life with IA and optimize their health and well‐being rather than be limited to the disease (Zangi et al, 2015). This overarching principle is similar for other chronic diseases as well (Prothero, Barley, Galloway, Georgopoulou, & Sturt, 2018; Stenberg, Haaland‐Overby, Haaland‐Øverby, Fredriksen, Westermann, & Kvisvik, 2016)

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