Health promotion with older informal caregivers: a demand-oriented organization of support

Abstract

Abstract Background Older informal caregivers are considered to be a growing, vulnerable group with multiple burdens. Existing support programs are rarely used which indicates a lack in meeting the specific demands of the target group. This study was to examine the need for support and the preferred design of support programs for informal caregivers aged 65 years and older. Methods A mixed-methods approach was used to identify types of current support programs and demands regarding health promotion and self-management of older informal caregivers. Therefore, two systematic literature researches and a qualitative survey of German program providers were performed. Furthermore, 16 focus group discussions (FGD) with older informal caregivers as well as three FGD with disseminators in three German cities were accomplished. Results Most support programs found focus on caregiving instead of health promotion. Most FGD participants preferred: social interaction with health promotion activities, programs thematically focusing on relaxation and physical activity as well as consultation meetings. One of the crucial factors of the utilization of support programs is the guaranteed care of the person who requires it simultaneous to an intervention. In general, it was found that informal caregivers prioritize the health of the person in need of care over their own which indicates low self-awareness. Conclusions Support programs combining social interaction with guided health promotion activities seem to be more attractive to informal caregivers than common programs. Those units should especially focus on the low self-awareness the target group shows. Local network structures need to be strengthened to facilitate the development and utilization of support programs. Key messages Networks of disseminators could facilitate support programs for informal caregivers. These programs should contain social interaction, health promotion activities and ensured care of the person who needs it.