Abstract
An optimized management of amyotrophic lateral sclerosis (ALS) is an added value of a follow-up by an interdisciplinary team. The aim of this study was to identify which professionals are involved in care of ALS patients at Portugal and their impact on quality of life (QoL). We divided the sample in Group 1 (G1; Southern) and Group 2 (G2; Northern) and used a semi-structured questionnaire, functional status scale (Amyotrophic Lateral Sclerosis Functional Rating Scale–Revised [ALSFRS-R]), and QoL evaluation to perform the study. There were observed differences at admission in ALSFRS-R, higher in G1, presence of specialized professionals higher in G2; non-invasive ventilation equipment had higher use and compliance in G1. Multiple regression analysis shows gender, education level, and technical aids as predictors of QoL. The study showed that, despite regional differences, there were external factors common to both groups that influenced QoL.
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