Abstract
OBJECTIVE: To study the health and health related quality of life of children living with HIV infected parents using Pediatric Quality of Life Inventory (PedsQL) ™ 4.0 Generic Core Scales. METHODS:The study was conducted from January 2013 to October 2014 at S.N.Medical College, Agra , ART centre and pediatrics OPD. The Pedsql generic core version 4.0 was administered to 300 children in the age group of 8-18 years living with HIV infected parents and 300 controls who visited the pediatric OPD for minor ailments. RESULTS:In this study it was found that children living with HIV infected parents had lower mean weight(26.89 vs 30.76 kg), height(1.09 vs 1.35metres) and body mass index (15.73 vs 17.16) compared with controls.The percentage of children not attending the school for more than six months was also significantly higher in the study group ( 32% vs 15% in controls.Their Pedsql scores were lower in emotional, social and school domains as compared with the controls. CONCLUSION:These findings are along expected lines, it is vital to establish a baseline of socioeconomic and physical parameters of such children in Indian context. This knowledge is vital to plan a meaningful policy intervention and to measure its efficacy. These findings can guide in the development of future interventions that promote care and support of children living in HIV/AIDS affected families. we feel more such studies are required in future to realise the big picture. DOI: 10.21276/AABS.1532
Highlights
HIV in children is a major health problem which is increasingly becoming prominent cause of childhood morbidity and mortality in India.The total number of people living with HIV in India is estimated at 2.4 million in 2009 with 4.4% children less than 15 years of age (NACO) (1).A search of the literature has shown that there has been very limited research on the HRQOL of children living with HIV infected parents in India
The information gathered on children living with HIV infected parents, including children orphaned by AIDS, would be of benefit to all the health team members, and family members involved in taking care of these young children and would assist in determining the resource allocation that is necessary in terms of social, emotional and school support that would optimise the quality of life of these children
In our study we found that children living with HIV infected parents had lower mean weight, height and body mass index compared with controls
Summary
A search of the literature has shown that there has been very limited research on the HRQOL of children living with HIV infected parents in India. The information gathered on children living with HIV infected parents, including children orphaned by AIDS, would be of benefit to all the health team members, and family members involved in taking care of these young children and would assist in determining the resource allocation that is necessary in terms of social, emotional and school support that would optimise the quality of life of these children. The specific domains assessed using the modified version of PedsQL 4.0 Generic Core Scales may highlight specific aspects of quality of life in children. The aim of this study was to study the health and health related quality of life of children living with HIV positive parents through Pedsql 4.0
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