Abstract

The increasing volume of Internet based health resources means that decisions about how to trust information and advice encountered online become ever more complicated. As peer-to-peer experiences become a source of health information, lay people are required to evaluate the trustworthiness of such online personal accounts. In this paper, we present two contemporary studies of the negotiation of trust in e-health. The first study explores how people come to select a trustworthy voice from a community of online peers whilst the second explores how video bloggers use the medium to present a credible account of their health experiences. Drawing on data from interviews with community members, video transcripts and viewers’ comments, we examine issues of trust, language and advice from the perspective of those presenting the authentic voice as well as those seeking to evaluate the voice. The paper highlights the importance of similarity matching, motivation and interactivity to the portrayal and recognition of trustworthy accounts online.

Highlights

  • Across a range of conditions, the Internet acts as a major resource for health

  • We examined whether participants felt that Online support groups (OSGs) offered credible, genuine voices that were useful to them

  • Whilst participants acknowledged there was a risk that posters may not be genuine, the majority of participants considered the experiences and by implication the posters they had encountered on OSGs were authentic

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Summary

Introduction

Across a range of conditions, the Internet acts as a major resource for health (cf. Fox/Duggan/Purcell 2013). The data is analysed using thematic analysis (cf Braun/Clarke 2006) adopting a contextualist middle ground epistemological position (cf Tebes 2005) where human actions and experiences can be understood in terms of their social context whilst recognising the value of the reality of the individual experience This approach allows us to examine both the ways in which credibility is portrayed and assessed by people engaging with online accounts of personal health and wellbeing. Across both studies, we are working with English language data. We will give further pointers on methodological steps and data selection processes in Section 2 and Section 3 below

Study 1
Accepting that these experiences are genuine
Understanding personal relevance as a way of evaluating trustworthy accounts
Challenging “trustworthy” accounts
Study 2
Video 1
Viewers’ responses to the video
Video 2
Findings
Discussion
Conclusion
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