Gözardı Edilmiş Psoriasis Mağdurları

Abstract

Objective: The quality of life of patients is closely related to the quality of life of family members who share the same environment. The quality of life of the relatives may deteriorate more than the quality of life of patients. Except for atopic dermatitis, the impact of skin diseases on the families of patients has been largely neglected. In this study, we aimed to investigate how the quality of life of family members was affected by the psoriatic patients' disease. Material and Methods: Seventy psoriasis patients, their relatives and controls were included in the study. Psoriasis severity index (PASI), Nail Psoriasis Severity Index (NAPSI), Psoriasis Quality of life Questionnaire (PQLQ), Dermatological Diseases Family Impact Scale (DeFIS) and Hospital Anxiety and Depression Scale (HADS) were used to determine severity of the disease, and nail psoriasis, quality of life of the psoriatic patient, effect of the patient's psoriasis on the relatives' quality of life, anxiety and depression levels of the patients, respectively. Results: Of the relatives of psoriatic patients, 94.3% reported psychological problems, 57.1% reported financial burden, 61.4% reported problems with physical well-being, 51.4% had social and 81.4% had patient care need problems. The DeFIS scores of the relatives correlated with the PQLQ (r=0.413, p=0.00), HADS-depression (r=0.277, p=0.02) and NAPSI (r=0.240, p=0.046) scores of the patients. Conclusion: Our results suggest that psoriasis affects the quality of life of the patient, as well as the relatives. Family members should also be supported psychosocially for the patients' well being.