Abstract

BackgroundFamily caregivers to patients who are severely ill have high use of primary health care and psychotropic medication. However, it remains sparsely investigated whether healthcare services target the most vulnerable caregivers.AimThis study aimed to examine associations between family caregivers’ grief trajectories of persistent high-grief symptom level (high-grief trajectory) versus persistent low-grief symptom level (low-grief trajectory), as well as early contacts with GPs or psychologists and the use of psychotropic medication.Design & settingA population-based cohort study of family caregivers (n = 1735) in Denmark was undertaken.MethodThe Prolonged Grief-13 (PG-13) scale measured family caregivers’ grief symptoms at inclusion (during the patient's terminal illness), 6 months after bereavement, and 3 years after bereavement. Multinomial regression was used to analyse register-based information on GP consultations, psychologist sessions, and psychotropic medication prescriptions in the 6 months before inclusion.ResultsA total of 1447 (83.4%) family caregivers contacted their GP, and 91.6% of participants in the high-grief trajectory had GP contact. Compared with family caregivers in the low-grief trajectory, family caregivers in the high-grief trajectory had ≥4 face-to-face GP consultations (odds ratio [OR] = 2.6; 95% confidence interval [CI] = 1.3 to 5.0), more GP talk therapy (OR =4.4; 95% CI = 1.9 to 10.0), and more psychotropic medication, but not significantly more psychologist sessions (OR = 1.7; 95% CI = 0.5 to 6.6).ConclusionFamily caregivers in the high-grief trajectory had more contact with their GP, but their persisting grief symptoms suggest that primary care interventions for family caregivers should be optimised. Future research is warranted in such interventions and in the referral patterns to specialised mental health care.

Highlights

  • Severe illness may cause grief and distress in patients and their relatives.[1]

  • Compared with family caregivers in the low-­grief trajectory, family caregivers in the high-­grief trajectory had ≥4 face-­to-f­ace GP consultations, more GP talk therapy (OR =4.4; 95% CI = 1.9 to 10.0), and more psychotropic medication, but not significantly more psychologist sessions (OR = 1.7; 95% CI = 0.5 to 6.6)

  • Family caregivers in the high-­grief trajectory had more contact with their GP, but their persisting grief symptoms suggest that primary care interventions for family caregivers should be optimised

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Summary

Introduction

Severe illness may cause grief and distress in patients and their relatives.[1] A substantial proportion of family caregivers report high levels of grief symptoms (15%),[2,3] caregiver burden (11%–33%),[4,5] and anxiety and depressive symptoms (15%–30%).[1,5] Previous studies have shown that family caregivers are prescribed more antidepressants and sedatives during end-­of-­life care and bereavement,[6,7] have more psychologist sessions before and after bereavement,[6] are hospitalised more often,[6,8] and have higher all-c­ause mortality[9] than non-b­ ereaved family caregivers These prior findings underline the highly stressful situation of most family caregivers before and after bereavement, and call for the identification of support needs at an early time point. It remains sparsely investigated whether healthcare services target the most vulnerable caregivers

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