Abstract
Children with congenital Zika syndrome (CZS) present severe motor disability and can benefit from early powered mobility. The Go Zika Go project uses modified ride-on toy cars, which may advance the body functions, activities, and participation of children. This paper describes the study protocol aiming to assess the feasibility of a modified ride-on car intervention for children with CZS in Brazil. A mixed-methods design with a multiple 1-week baseline, 3-month intervention, and 1-month follow-up will be implemented. Modified ride-on car training sessions will be conducted three times a week at the participants’ home or in the clinic. The primary outcome will be a narrative description of study feasibility (photovoice method, focus groups, parent feasibility questionnaire and assessment of learning powered mobility). Secondary outcomes will be switch activation, driving sessions journal, social-cognitive interactions, mobility (pediatric evaluation of disability inventory computer adaptive test), goal attainment scaling (GAS), and participation (young children’s participation and environment measure). Go Zika Go is expected to be viable and to improve function, activity, and participation of children with CZS, providing a low-cost, evidence-based rehabilitation option that will be relevant to early child development in a global perspective.
Highlights
Congenital Zika syndrome (CZS) became a global concern after the Zika virus outbreak in2015, which mainly affected Brazil [1]
The results indicated that the intervention program based on the principles of Goals-Activity-Motor Enrichment (GAME) improved mothers’ assessment of their babies’ performance, and satisfaction with the performance of functional priorities and the perception of an enriched home environment [5]
Several studies have showed the results of a powered mobility intervention with modified ride-on car on the behavior and development of young children with disabilities, including cerebral palsy (CP)
Summary
Congenital Zika syndrome (CZS) became a global concern after the Zika virus outbreak in. Several studies have showed the results of a powered mobility intervention with modified ride-on car on the behavior and development of young children with disabilities, including CP. The limitations of previous work includes a heavy reliance on low-evidence level research designs (i.e., case reports and case series); the inclusion of participants with varying disabilities in the same sample; and the reporting of a wide variety and often very low adherence rates to recommended use guidelines These limitations have hindered the interpretation and generalization of study results and will be addressed in the current protocol. Participation-based interventions are a promising strategy to improve participation and body functions [20], there are no evidenced-based practices to guide clinical recommendations of early powered mobility device use, including modified ride-on cars, for young children with disabilities, including CZS. Function, and (b)(b) participation of of young children with andand their families
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