Abstract

In 2013, Georgina Sposetti was diagnosed with Lewis-Sumner syndrome, a rare nervous system disorder for which there was no treatment at the time. As the founder of one of Argentina's foremost research centres, the Mar Del Plata Instituto de Investigaciones Clinica (Buenos Aires), her first impulse was to go online and volunteer for a medical trial, but she was immediately struck by how difficult it might be for a non-specialist to navigate the opaque world of clinical research. “At that moment”, she explains over a Zoom call, “I realised that for anyone who does not have the technical knowledge, this was an impossible task.” Since then, she has been working to demystify her profession and revolutionise trial recruitment in Latin America so that anyone with an internet connection and the right profile can sign themselves up.

Full Text
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