Abstract
The highly observant practice of Judaism influences how genetic counseling and birth defects are understood and affects patient decisions regarding treatment and prevention. This study is based upon interviews and observations of 18 highly observant Israeli families who have a child with Down's Syndrome or an oral cleft. Participant observation at two birth defects clinics plus interviews with ten rabbis and a review of relevant religious writings clarify how belief relates to observance. Religion and culture are found to influence explanatory models, attitudes about disability and deviance, sex roles and health behaviors.
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