Abstract
Background: Generation Scotland (GS) is a population and family-based study of genetic and environmental health determinants. Recruitment to the Scottish Family Health Study component of GS took place between 2006-2011. Participants were aged 18 or over and consented to genetic studies, linkage to health records and recontact. Several recontact exercises have been successfully conducted aimed at a) recruitment to embedded or partner studies and b) the collection of additional data. As the cohort matures in age, we were interested in surveying attitudes to potential new approaches to data collection and recruitment. Methods: A ten-question online survey was sent to those participants who provided an email address. Results: We report a high level of positive responses to encouraging relatives to participate, to remote data and sample collection and for research access to stored newborn dried blood spots. Conclusions: The majority of current and prospective GS participants are likely to respond positively to future requests for remote data and sample collection.
Highlights
Generation Scotland (GS) is a population and family-based study of genetic and environmental health determinants
Any further responses from the reviewers can be found at the end of the article Introduction The Generation Scotland: Scottish Family Health Study cohort comprises nearly 24,000 participants in around 7,000 family groups, aged 18 or over at the time of recruitment[1]
Each recruit completed a questionnaire on medical history, personality and lifestyle, attended a clinical examination, provided biological samples and consented to linkage to the routine medical records collected by NHS Scotland
Summary
Generation Scotland (GS) is a population and family-based study of genetic and environmental health determinants. This has given us a broad feel for how health study participants are likely to respond to future approaches and requests for data sharing that will be of use to use and hopefully others too. Any further responses from the reviewers can be found at the end of the article Introduction The Generation Scotland: Scottish Family Health Study (hereafter GS) cohort comprises nearly 24,000 participants in around 7,000 family groups, aged 18 or over at the time of recruitment[1].
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