From Patient Navigation to Cancer Justice: Toward a Culture-Centered, Community-Owned Intervention Addressing Disparities in Cancer Prevention

Shaunak Sastry,Heather M Zoller,Taylor Walker,Steve Sunderland

doi:10.3389/fcomm.2017.00019

Shaunak Sastry, Heather M Zoller + Show 2 more

Open Access

https://doi.org/10.3389/fcomm.2017.00019

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Abstract

In this study, we analyze data from an ongoing academic-community collaboration targeted at conceptualization and delivery of a patient navigation intervention for cancer prevention. Echoing overall U.S. trends, the region under study is earmarked by significant socioeconomic and racial disparities in cancer outcomes. While there is a large body of research on the use of patient navigation across the continuum of cancer care, the role of communication in shaping navigation is unclear in the literature. Responding to this gap, we use the culture-centered approach to document how community-based “lay” patient navigators’ local knowledge and cultural expertise shaped the scope and meanings of patient navigation for a predominantly African-American population. Qualitative data in the form of navigator interviews, participant observation of navigation, and research team members’ reflexive journals were used to document how the definition and scope of navigation were re-inscribed by community navigators. While navigation was initially equated with screening promotion, interaction with community members led to the development of more listening-focused and structural barrier-focused conceptualization of patient navigation. Finally, we discuss the implications and contributions and limitations of this study.

Highlights

Reviewed by: James Olumide Olufowote, University of Oklahoma, United States Nadine Yehya, American University of Beirut, Lebanon
While there is a large body of research on the use of patient navigation across the continuum of cancer care, the role of communication in shaping navigation is unclear in the literature
While navigation was initially equated with screening promotion, interaction with community members led to the development of more listening-focused and structural barrierfocused conceptualization of patient navigation

Summary

Introduction

Reviewed by: James Olumide Olufowote, University of Oklahoma, United States Nadine Yehya, American University of Beirut, Lebanon. While there is a large body of research on the use of patient navigation across the continuum of cancer care, the role of communication in shaping navigation is unclear in the literature. Responding to this gap, we use the culture-centered approach to document how community-based “lay” patient navigators’ local knowledge and cultural expertise shaped the scope and meanings of patient navigation for a predominantly African-American population. CCA and Patient Navigation to “any type of service that assists individuals in overcoming obstacles from screening to treatment and in coping with challenges during survivorship” (Wells et al, 2008, p. 2001)

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