Abstract

Environmental health issues are becoming more challenging, and addressing them requires new approaches to research design and decision-making processes. Participatory research approaches, in which researchers and communities are involved in all aspects of a research study, can improve study outcomes and foster greater data accessibility and utility as well as increase public transparency. Here we review varied concepts of participatory research, describe how it complements and overlaps with community engagement and environmental justice, examine its intersection with emerging environmental sensor technologies, and discuss the strengths and limitations of participatory research. Although participatory research includes methodological challenges, such as biases in data collection and data quality, it has been found to increase the relevance of research questions, result in better knowledge production, and impact health policies. Improved research partnerships among government agencies, academia, and communities can increase scientific rigor, build community capacity, and produce sustainable outcomes.

Highlights

  • Participatory research approaches, in which researchers and communities are involved in all aspects of a research study, can improve study outcomes and foster greater data accessibility and utility as well as increase public transparency

  • The involvement of citizen scientists and communities in environmental health research has increased rapidly in the past decade, along with the emergence of environmental monitoring technologies, the utilization of mobile devices to collect data, and the growth of online data sharing

  • Citizens1 have become increasingly involved in research owing to multiple factors, including the improved accuracy and reduced cost of environmental sensors, an increased emphasis on and realization of the benefits of community participation, and the tightening of research budgets, which in some instances may necessitate the involvement of the public,2 especially when collecting large volumes of data

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Summary

Annual Review of Public Health

From Crowdsourcing to Extreme Citizen Science: Participatory Research for Environmental Health. See credit lines of images or other third-party material in this article for license information. Citizen science, community-engaged research, environmental sensors, crowdsourcing, health policy

INTRODUCTION
THE BROAD SCOPE OF PARTICIPATORY RESEARCH
Increasing public involvement
CONCEPTUAL MODEL FOR PARTICIPATORY RESEARCH FOR ENVIRONMENTAL HEALTH
Environmental health policy change
PARTICIPATORY RESEARCH AND ENVIRONMENTAL JUSTICE
INCORPORATING LOCAL LAY KNOWLEDGE WITH ASSET AND HAZARD MAPPING
BENEFITS IN USING PARTICIPATORY RESEARCH IN ENVIRONMENTAL HEALTH
CURRENT CHALLENGES IN PARTICIPATORY RESEARCH
FUTURE RESEARCH DIRECTIONS
LITERATURE CITED
Social Environment and Behavior
Environmental and Occupational Health
Public Health Practice and Policy
Health Services

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