Framing dementia care in families with a migration background: an analysis of practitioners' and family carers' views and experiences

Abstract

AbstractLittle is known regarding the ways in which practitioners' views and approaches impact support for persons with a migration background (PwM) caring for individuals with dementia. This paper responds to this knowledge gap by identifying how practitioners frame dementia care in families with a migration background, and how these frames can be understood in light of the experiences of PwM caring for a family member with dementia. A total of 41 participants were included: ten practitioners (i.e.health and social care workers) and 31 PwM caring for a family member with dementia. All participants were part of a qualitative research project on dementia care in Dutch families with a migration background. Practitioners' expressed frames were identified through Hochschild's interpretive framework of ‘framing and feeling rules’. Thereafter, practitioners' identified frames were related to the care experiences of PwM caring for a family member with dementia. Findings indicate that practitioners operate within an approach that does not sufficiently take into account the uniqueness of each family carer. This leads to frictions within the practitioner–client relationship. We thus highlight the need for discussions about the tenability of practitioners' views and approaches in an increasingly globalised and diverse society.