Abstract
This study aimed to discover how potential eligible donor families perceive the decision-making process to refuse organ and tissue donation for transplantation. A qualitative research was performed in order to understand the families' perception, based on the situated-phenomenon structure. Eight family members were interviewed, with four themes and fourteen subthemes emerging from the analysis of the statements. The propositions that emerged from the study indicated that the essence of the phenomenon was manifested as a shocking or despairing situation, experienced through the hospitalization of the family member; distrust regarding organ donation; denial of brain death; grief and weariness due to the loss of the loved one, family conflicts for making the decision and the multiple causes for refusing donation. Therefore, the knowledge of this phenomenon can provide information to guide professional action involving the families of potential donors.
Highlights
Donation and transplantation constitute a complex process, starting with the identification and maintenance of potential eligible donors
Doctors notify the family about the possible brain death, run exams to support the brain death diagnosis, and notify the Center for Organ Sharing (COS) about the potential donor, which forwards the notification to the Organ Procurement Agency (OPA)
If the family authorizes the donation, the OPA communicates the eligibility of the donor to the COS, which distributes the organs, indicating the transplantation team that will be in charge of their removal and implantation
Summary
This study aimed to discover how potential eligible donor families perceive the decision-making process to refuse organ and tissue donation for transplantation. The propositions that emerged from the study indicated that the essence of the phenomenon was manifested as a shocking or despairing situation, experienced through the hospitalization of the family member; distrust regarding organ donation; denial of brain death; grief and weariness due to the loss of the loved one, family conflicts for making the decision and the multiple causes for refusing donation. La investigación tuvo como objetivo conocer la percepción que tienen los familiares de potenciales donadores sobre el proceso de toma de decisión para rechazar la donación de los órganos y tejidos para transplantes. A pesquisa teve como objetivo conhecer a percepção dos familiares de potenciais doadores sobre o processo de tomada de decisão para recusar a doação de órgãos e tecidos para transplante. Disponible en castellano/Disponível em língua portuguesa SciELO Brasil www.scielo.br/rlae
Sign-in/Register to view highlights & summary Sign-in/Register to access full text options 
Free) 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a call
