Family experience living with advanced neoplasm: a glance at the rural population.

Danusa Begnini,Nara Marilene Oliveira Giradon-Perlini,Isabel Cristina Pacheco Van Der Sand,Lucía Silva,Mardrig Beuter,Maira Deguer Misko

doi:10.1590/0034-7167-2018-0895

Abstract

to understand the experience of rural families living with advanced cancer, from Family Management Style Framework's perspective. a qualitative research conducted in seven cities of the northern of state of Rio Grande do Sul in homes of 11 families (27 people). Data collection took place in 2014, using the genogram and narrative interview. Analysis followed Family Management Style Framework's theoretical model. the results were organized into three categories based on conceptual components of the referred model: no more normal life: situation definition; attempt to reconcile care and work: management behavior; imminence of the finitude of life: perception of consequences. living in rural context gives families specific ways of dealing with advanced cancer. Understanding the movements undertaken by rural families throughout the experience can guide nursing professionals in planning interventions collaborating with this population's health.

Highlights

Cancer is a public health problem due to the magnitude of the epidemiological data, whether due to its incidence, to the population’s quality of life and to its high mortality rate[1]
Rural populations are included, which have particularities in relation to access to health services, cultural actions and aspects related to their routine, which impacts on cancer incidence[2]
Experiencing, as a rural family, advanced cancer is a revelation of a challenge

Summary

Introduction

Cancer is a public health problem due to the magnitude of the epidemiological data, whether due to its incidence, to the population’s quality of life and to its high mortality rate[1]. Rural populations are included, which have particularities in relation to access to health services, cultural actions and aspects related to their routine, which impacts on cancer incidence[2]. In countries such as Brazil, where there is a decline in mortality associated with infectious diseases and an increase in chronic noncommunicable diseases, the most commonly diagnosed neoplasms are lung, breast, prostate and colorectal[2]. This determinant places Rio Grande do Sul in the fourth position in the ranking of cancer incidence among the federative units[3]

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Conclusion