Abstract
Children’s health and wellness are influenced by a wide range of biological, psychological or social factors with a rising number of children requiring supportive healthcare. Family-centred care is considered best practice paediatric healthcare; however, processes and actions are not well explored in the literature. This research aimed to synthesise the evidence on the processes of implementation of family-centred care for children with biopsychosocial support needs and identify outcome measures used in the studies. A scoping search across Cinahl, Medline, Web of Science, Scopus, Psyc INFO, Embase and Education Research Complete for English language publications published between 2005 and 14 October 2020 was conducted. A total of 42 studies met the inclusion criteria: a focus on the processes of implementation of family-centred care for children aged 0–21 years with biopsychosocial needs. Diversity in the implementation of interventions of family-centred care was evident due to heterogeneity in study populations, methodology and reporting. Health condition or impairment focused outcome measures were found to be standard with a paucity of outcomes measuring participation or activity. Theoretical and practical elements of implementing interventions were identified as novel and key attributes of family-centred care and contributed to a new standardised framework for the processes of implementation of family-centred care. Future research should address whether mapping family-centred care to the International Classification of Function model helps families and health professionals identify meaningful participation and activity outcomes, which in turn may guide the processes of implementation of family-centred care interventions.
Highlights
Children’s physical, psychological and social health and wellbeing are influenced by a complex interaction of biology and social determinants
Processes of implementation are that are key to family-centred described within within the the pale pale blue blue figure figure arrows arrows and and each each process process is is influenced influenced by by the the biopsychosocial biopsychosocial needs needs of of the the child child and and described family unit. The purpose of this scoping review was to synthesise the processes for implementing family-centred care interventions for children with biopsychosocial support needs and to illustrate the outcome measures used in the studies
16 countries, illustrating that the implementation of family-centred care has been widely
Summary
Children’s physical, psychological and social health and wellbeing are influenced by a complex interaction of biology and social determinants (biopsychosocial factors). A significant proportion of children globally have lived experience of impairment and/or long-term health conditions with an estimated 15% of the world’s population living with a disability [1]. This includes a speculative 93 million children between the ages of 0–14 years worldwide, this number must be interpreted cautiously due to variable definitions of disability and data collection methodologies internationally [2]. In addition to physical needs, children’s health and wellness are subject to social and environmental inequities with poorer children having poorer health and developmental outcomes [5]. Children with additional biopsychosocial needs may require support to maintain an optimal state of health or wellness to ensure
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