Abstract

Cognitive impairment (e.g. dementia) presents challenges for individuals, their families, and healthcare professionals alike. The primary care setting presents a unique opportunity to care for older adults living with cognitive impairment, who present with complex care needs that may benefit from a family-centered approach. This indepth systematic review was completed to address three aims: (a) identify the ways in which families of older-adult patients with cognitive impairment are engaged in primary care settings, (b) examine the outcomes of family engagement practices, and (c) organize and discuss the findings using CJ Peek’s Three World View. Researchers searched PubMed, Embase, and PsycINFO databases through July 2019. The results included 22 articles out of 6743 identified in the initial search. Researchers provided a description of the emerging themes for each of the three aims. It revealed that family-centered care and family engagement yields promising results including improved health outcomes, quality care, patient experience, and caregiver satisfaction. Furthermore, it promotes and advances the core values of medical family therapy: agency and communion. This review also exposed the inconsistent application of family-centered practices and the need for improved interprofessional education of primary care providers to prepare multidisciplinary teams to deliver family-centered care. Utilizing the vision of Patient- and Family-Centered Care and the lens of the Three World View, this systematic review provides Medical Family Therapists, healthcare administrators, policy makers, educators, and clinicians with information related to family engagement and how it can be implemented and enhanced in the care of patients with cognitive impairment.

Highlights

  • The library scientist assisted in defining key search terms (e.g. Three World View, family-centered care, older adults, primary care, cognitive impairment), MeSH terms, and syntax utilized within each database

  • Four studies were hypothetically based using case vignettes, rather than patient observations, which allowed for better understanding of provider preferences and ideal decision-making processes

  • Regardless, utilizing patient- and family-centered care (PFCC) (Johnson & Abraham, 2012) and Three World View (Peek, 2008), this systematic review provides Medical Family Therapists, healthcare administrators, policy makers, educators, and clinicians with information related to family engagement and how it can be implemented and enhanced in the care of patients with Cognitive impairment (CI)

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Summary

Methods

Design and Research QuestionThis review followed Cooper’s (2017) seven-step model for conducting systematic reviews. It adhered to the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) standards of quality for reporting systematic reviews (Moher et al, 2009). This process involved the following steps: (a) formulation of the problem, (b) development of the research question, (c) systematic review of the literature, (d) data extraction, (e) quality appraisal of included studies, (f) analysis, and (g) synthesis of the findings. The following research question guided this systematic review: What are the clinical, operational, and financial outcomes of family-centered primary care with older-adult patients experiencing CI? The library scientist assisted in defining key search terms (e.g. Three World View, family-centered care, older adults, primary care, cognitive impairment), MeSH terms A full list of search terms and syntax are available upon request

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