Abstract
Background: Family centered care of hospitalized children (FCCHC) is a multidimensional concept, which is directly associated with the context and healthcare system. This study was conducted to analyze the concept of FCCHC in Iran.Methods: This concept analysis was conducted with the use of hybrid model in 3 phases: a literature review in the theoretical phase, semi-structured interviews and descriptive observations in the fieldwork phase, and combination of the results of 2 previous phases in the final analytical phase.Results: The 4 main themes extracted in theoretical phase included "family and healthcare professional participation", "information sharing with families", "family and healthcare professional relationship based on dignity and respect" and "individualized care of family".Moreover, 4 themes were emerged in the fieldwork phase, including "family as a nonparticipant visitor", "one-way education", "non-supportive interactions" and "non-specific care of family". In third phase with combination of the results of 2 phases, the final definition of the concept was presented.Conclusion: FCCHC is a comprehensive care that is affected by human and organizational factors and requires full participation of staff and family, effective interaction with family, education and information sharing with them, and individualized care of each family. By knowing the dimensions of the FCCHC, we will be able to run our activities to provide facilities and features for its optimal implementation in Iran.
Highlights
Children illness and hospitalization with different reasons is an inevitable event that can disrupt the natural process of child’s life and even affect his/her development.[1,2] In this situation, parents are faced with high level of stress and anxiety[3]; They may feel confused, angry and sinful; and even demonstrate their frustration with inappropriate behaviors such as; restlessness, irritability and isolation.[4]
Results of the theoretical phase Based on the literature review, the primary foundations of family centered care (FCC), was formed in the 1960s
Most of the papers found at the theoretical phase were reviews of the definition and conceptualization of FCCHC6,11,16,23; some had dealt with these concepts through expressing its importance from the views of the people involved[8,24,25,26,27]; and some brought examples of FCC,[28,29,30] or available challenges of its implementaion.[31]
Summary
Children illness and hospitalization with different reasons is an inevitable event that can disrupt the natural process of child’s life and even affect his/her development.[1,2] In this situation, parents are faced with high level of stress and anxiety[3]; They may feel confused, angry and sinful; and even demonstrate their frustration with inappropriate behaviors such as; restlessness, irritability and isolation.[4]. FCC is such an important phenomenon that has been examined with different approaches such as paradigm,[7] philosophy,[1,8,9] theory[10] or concept.[6,11,12,13] FCC is considered the standard for pediatric healthcare by many clinical professions, hospitals, and healthcare groups; but despite widespread endorsement, FCC continues to be insufficiently implemented into the clinical practice.[14] Different literature expressed some characteristics for family centered care of hospitalized children (FCCHC). Methods: This concept analysis was conducted with the use of hybrid model in 3 phases: a literature review in the theoretical phase, semi-structured interviews and descriptive observations in the field work phase, and combination of the results of 2 previous phases in the final analytical phase. By knowing the dimensions of the FCCHC, we will be able to run our activities to provide facilities and features for its optimal implementation in Iran
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