Abstract
BackgroundFamily caregivers of people with mental disorders are frequently involved in involuntary hospital admissions of their relatives.ObjectiveTo explore family caregivers' experience of involuntary admission of their relative.Method30 in-depth interviews were conducted with family caregivers of 29 patients who had been involuntarily admitted to 12 hospitals across England. Interviews were analysed using thematic analysis.ResultsFour major themes of experiences were identified: relief and conflicting emotions in response to the relative's admission; frustration with a delay in getting help; being given the burden of care by services; and difficulties with confidentiality.Relief was a predominant emotion as a response to the relative's admission and it was accompanied by feelings of guilt and worry. Family caregivers frequently experienced difficulties in obtaining help from services prior to involuntary admission and some thought that services responded to crises rather than prevented them. Family caregivers experienced increased burden when services shifted the responsibility of caring for their mentally unwell relatives to them. Confidentiality was a delicate issue with family caregivers wanting more information and a say in decisions when they were responsible for aftercare, and being concerned about confidentiality of information they provided to services.ConclusionCompulsory admission of a close relative can be a complex and stressful experience for family caregivers. In order for caregivers to be effective partners in care, a balance needs to be struck between valuing their involvement in providing care for a patient and not overburdening them.
Highlights
The importance of family caregivers’ involvement in mental health services has been increasingly emphasised over the past decade and there is a wide consensus that family caregivers should be seen by clinicians as partners in the care of patients [1]
Caregivers frequently experienced difficulties in obtaining help from services prior to involuntary admission and some thought that services responded to crises rather than prevented them
Confidentiality was a delicate issue with family caregivers wanting more information and a say in decisions when they were responsible for aftercare, and being concerned about confidentiality of information they provided to services
Summary
The importance of family caregivers’ (in the literature referred to as ‘carers’) involvement in mental health services has been increasingly emphasised over the past decade and there is a wide consensus that family caregivers should be seen by clinicians as partners in the care of patients [1]. Evidence suggests that family caregivers’ experiences of working with mental health professionals are mixed. Some family caregivers experience distress as a result of their interaction with the mental health care system Research suggests that family caregivers often request more supportive and intensive interventions, whereas patients prefer treatment options preserving their autonomy and independence [5]. Caregivers of people with mental disorders are frequently involved in involuntary hospital admissions of their relatives
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