Abstract

The opinions of families of 76 children with epilepsy (>3 months seizure-free) and their 4 physician epilepsy specialists regarding acceptable risks of seizure recurrence (RSR) after AED withdrawal were investigated by questionnaire at the IWK Children’s Hospital, Halifax, Nova Scotia, Canada.

Highlights

  • A population-based study of 78 Swedish children with non-progressive ataxia is reported from the Department of Paediatrics, Malarsjukhuset, Eskilstuna; Department of Neuroradiology, Karolinska Institute, Stockholm; and Department of Paediatrics, University of Goteborg, Sweden

  • The opinions of families of 76 children with epilepsy (>3 months seizure-free) and their 4 physician epilepsy specialists regarding acceptable risks of seizure recurrence (RSR) after AED withdrawal were investigated by questionnaire at the IWK Children's Hospital, Halifax, Nova Scotia, Canada

  • Families' responses were very variable: a RSR of 25% was unacceptable to 42% of families, whereas a >75% risk was considered acceptable by 20%

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Summary

Introduction

The opinions of families of 76 children with epilepsy (>3 months seizure-free) and their 4 physician epilepsy specialists regarding acceptable risks of seizure recurrence (RSR) after AED withdrawal were investigated by questionnaire at the IWK Children's Hospital, Halifax, Nova Scotia, Canada. Families' responses were very variable: a RSR of 25% was unacceptable to 42% of families, whereas a >75% risk was considered acceptable by 20%. The degree of risk acceptable to a particular family was not predicted by their physicians.

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