Families’ experiences of accessing intervention for their children with neurodevelopmental disabilities in Malaysia: a systematic review

Abstract

Objectives This study aims to systematically review available evidence on families’ experiences of accessing interventions for their child with neurodevelopmental disabilities in Malaysia. Methods This review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses, was conducted on seven databases, targeting studies in both English and Malay. The Mixed Method Appraisal Tool was used to evaluate risk of bias. Results Nineteen studies were included. Findings highlighted a lack of parental knowledge and awareness about neurodevelopmental conditions. Families also faced limited capacity in publicly funded services, high cost of private interventions, and access restrictions due to geographical location. Families of low socioeconomic status and those residing in rural areas were particularly affected. Conclusions The evidence presented emphasises the crucial need for improving national policies and expanding intervention facilities. Future research needs to investigate neurodevelopmental disorders beyond autism and should also seek input from other stakeholders.