Abstract
This study examined the relationship of caregiver burden with various patient and caregiver variables. 50 individuals with Parkinson’s Disease were administered the Movement Disorder Society’s Unified Parkinson’s Disease Rating Scale (MDS-UPDRS), Hoehn and Yahr’s Scale (HY), Mini Mental Status examination (MMSE), and their caregivers were administered the Zarit Burden Interview (ZBI). Kruskal Wallis ANOVAs and Mann Whitney U tests showed that caregivers suffering from ill health (Ux=402, p= 0.03) and the patients’ MDS-UPDRS scores significantly affected caregiver burden. Simultaneous multiple regression analysis showed that MDS-UPDRS Part I,II and III were significant predictors of burden (R2= 0.72, p<0.0001) of which the motor examination emerged as the most significant predictor of burden.
Highlights
Parkinson’s disease (PD) is primarily a slowly progressive neurological disorder
An analysis of the relationship between the various caregiver variables and the Zarit Burden Interview (ZBI) score showed that only ill health (Mann-Whitney U=402, p
This study aimed to find the factors related to caregiver burden among caregivers of patients with Parkinson’s disease in an urban population in India
Summary
Parkinson’s disease (PD) is primarily a slowly progressive neurological disorder. People with PD experience both motor and non-motor symptoms that have a significant impact on their ability to carry out activities of daily living and which result in a progressive dependence on others to help them with various activities. While caregivers’ responsibilities depend on the individual needs of the patient, often in the case of chronic and progressive diseases such as Parkinson’s Disease, their responsibilities may keep increasing till at a certain point, caregiving may become their main or only activity (Martinez-Martin et al, 2007). Caregivers may experience caregiver burden, which is “a multidimensional response to the negative appraisal and perceived stress resulting from taking care of an ill individual” and refers to “the realm of physical, mental, and socio-economic problems experienced by the caregivers of chronic patients” (Zarit et al, 1980, cited Martinez-Martin et al, 2007). Caregiver burden is important to study as it has a significant impact on various aspects of the physical, psychological, emotional and functional health of caregivers (e.g.sZarit et al, 1980, Parks &Novielli 2000, Etters et al, 2008, Carretero et al 2009, all cited Martinez-Martin et al, 2007). The aim of the study was to understand the role of various patient and caregiver variables on caregivers' perceived caregiving burden
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