Abstract
BackgroundPeople with intellectual disabilities have been historically excluded from decision-making processes. Previous literature indicates that increasing social participation may be an effective way to address this exclusion, but no systematic review of interventions designed to increase social participation of people with intellectual disabilities have been conducted. This study aims to identify and organize the factors associated with interventions that increase the social participation of people with intellectual disabilities and to provide a set of best of practices for future interventions.Methods/designThe databases Web of Science, Scopus, LILACS, and PubMed will be searched for articles from January 2004 onwards; grey literature search will be identified through searching additional databases (such as Google Scholar and EBSCO databases). Randomized controlled trials, nonrandomized controlled trials, and controlled pre–post studies will be included. Noncontrolled pre–post studies will also be included. Observational or qualitative studies will be excluded. The primary outcomes are measures of social participation. Secondary outcomes include measures of well-being, stigma, knowledge about rights, and advocacy processes. Two reviewers will independently screen articles, extract relevant data, and assess the quality of the studies. We will provide a meta-analysis of included studies if possible, or a quantitative narrative synthesis otherwise.DiscussionThis systematic review will add to our understanding of effective social participation interventions for people with intellectual disability. It will allow us to identify and organize which factors lead to an increase in social participation and help us define a set of best practices to be followed by future interventions.Systematic review registrationPROSPERO CRD42020189093
Highlights
People with intellectual disabilities have been historically excluded from decision-making processes
This systematic review will add to our understanding of effective social participation interventions for people with intellectual disability
It will allow us to identify and organize which factors lead to an increase in social participation and help us define a set of best practices to be followed by future interventions
Summary
People with intellectual disabilities have been historically excluded from decision-making processes. People with disabilities (PWD) have been historically excluded from decision-making processes, and they have been pushed to the role of subjects of care instead of full citizens with rights, with freedom for choosing when and how to participate in society. This situation has been slowly improving since the United Nations (UN) published the Convention on the Rights of Persons with Disabilities (CRPD) in 2006. We are interested in the particular case of interventions involving people with intellectual disability (ID) as they tend to face stronger barriers against participation than other PWD [2]. Research suggests that people with ID need tools to empower them and spaces where they can learn about their rights because they are not usually afforded the opportunities to participate [9]
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