Abstract
BackgroundQuality of care (QoC) is a highly important topic in inflammatory bowel disease (IBD). We recently elaborated a decalogue of QoC indicators (IQCARO-QoC) developed by IBD patients. The aim of the present study was to assess the factors associated with patients’ evaluation of QoC in Spain using the IQCARO-QoC Decalogue recently developed by IBD patients.MethodsA survey including patients’ socio-demographic and clinical characteristics, and the IQCARO-QoC Decalogue, was completed by IBD patients. We described patients’ assessment of QoC across Spanish patients. A univariable and multivariable analysis was performed to explore the associations between patients’ characteristics and QoC.ResultsQuestionnaires from 788 participant patients were analysed. Participants’ mean age was 43.4 years, 63% were females and 58% had Crohn’s disease. The mean QoC score was 8.1 (± 2.4 SD) points out of a maximum of 10. Items with the lowest score were related to the provision of information and the implication of the medical team throughout the entire patient care. Factors associated with better QoC scores included: being employed better disease control, fewer numbers of unscheduled visits, and being followed by a gastroenterologist specialized in IBD.ConclusionsSpanish patients’ reported QoC seems to be globally good although there is room for improvement, especially in providing adequate information to patients. Care provided by specialized IBD gastroenterologists seems to be related with higher QoC scores.
Highlights
Quality of care (QoC) is a highly important topic in inflammatory bowel disease (IBD)
We carried out an analysis to explore associations between socio-demographic and clinical characteristics of IBD patients and the QoC index (QoCI) obtained after the completion of IQCARO-QoC Decalogue using appropriate statistical tests, according to the nature of the variables analyzed (Chi squared, U Mann-Whitney, KruskalWallis or the Spearman correlation coefficient)
A remarkable finding is that there was a strong positive correlation between QoC scores and being treated by a gastroenterologist specialized in IBD
Summary
Quality of care (QoC) is a highly important topic in inflammatory bowel disease (IBD). We recently elaborated a decalogue of QoC indicators (IQCARO-QoC) developed by IBD patients. The aim of the present study was to assess the factors associated with patients’ evaluation of QoC in Spain using the IQCARO-QoC Decalogue recently developed by IBD patients. Health-related quality of care (QoC) has recently drawn increased attention in IBD, with various international guidelines and quality indicators being developed to assess every aspect of health care delivery [2, 3]. In order to achieve this, health care must be safe, effective, timely, efficient, equitable and patientcentered” [4, 5]. In this context, patients’ perspective is increasingly being recognized as a necessary element for health care evaluation [3]. At present, tools to measure QoC in IBD from the patients’ perspective are complex [7] and are barely applied to the clinical practice [8,9,10]
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