Abstract
Even though participation in everyday events is a vital part in the fulfilment of human rights, adolescents with neurodevelopmental disorders often face participation restrictions in every-day acti ...
Highlights
Participation and Participation Restrictions for Adolescents With Neurodevelopmental DisordersWithin the International Classification of Functioning, Disability, and Health (ICF) participation is defined as involvement in a life situation, i.e., functioning in everyday activities (World Health Organization, 2007)
The main findings are (1) more factors were associated with participation outcomes at time1 for adolescents without neurodevelopmental disorder (NDD) than for adolescents with NDD, but this difference in the number of factors decreases with time; (2) only a few associations were related to time for both adolescents with and without NDD; and (3) patterns of predicting variables are different for adolescents with and without NDD
This study reveals that patterns of participation are partly associated with different factors for adolescents with and without NDD, but that the patterns become more similar with time
Summary
Participation and Participation Restrictions for Adolescents With Neurodevelopmental DisordersWithin the International Classification of Functioning, Disability, and Health (ICF) participation is defined as involvement in a life situation, i.e., functioning in everyday activities (World Health Organization, 2007). In this study, focusing on participation of adolescents with self-reported NDD, participation is operationalized as frequency of attending activities (representing the “being there” dimension) and the perceived importance of the activity (representing the person’s own experience of involvement while being there) (Arvidsson et al, 2012; Imms and Adair, 2017). Adolescents with NDD (e.g., intellectual disability, ADHD, autism spectrum disorder) in Sweden have lower self-reported wellbeing than their typically functioning peers (Statens Folkhälsoinstitut, 2011). This might indicate that they experience lower participation. Their conclusion was that participation can be best described as a pattern of functioning dependent on several factors
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