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Abstract
BackgroundPrevious studies have shown that stigma is a major barrier to participation in psychiatric research and that individuals who participate in psychiatric research may differ clinically and demographically from non-participants. However, few studies have explored research recruitment and retention challenges in the context of personality disorders.AimTo provide an analysis of the factors affecting participant recruitment and retention in a study of borderline personality disorder among general psychiatric inpatients.MethodsAdult inpatients in a tertiary psychiatric hospital were approached about participating in a cross-sectional study of borderline personality disorder. Recruitment rates, retention rates, and reasons for declining participation or withdrawing from the study were collected. Demographic characteristics were compared between participants and non-participants and between patients who remained in the study and those who withdrew.ResultsA total of 71 participants were recruited into the study between January 2018 and March 2020. Recruitment and retention rates were 45% and 70%, respectively. Lack of interest was the most commonly cited reason for non-participation, followed by scheduling conflicts and concerns regarding mental/physical well-being. Age and sex were not predictors of study participation or retention.ConclusionsMore research is needed to explore patients’ perspectives and attitudes towards borderline personality disorder diagnosis and research, determine effects of different recruitment strategies, and identify clinical predictors of recruitment and retention in personality disorder research.
Highlights
Previous studies have shown that stigma is a major barrier to participation in psychiatric research and that individuals who participate in psychiatric research may differ clinically and demographically from nonparticipants
There were uncertainties regarding the barriers to participant recruitment and retention in borderline personality disorder research and potential strategies for improving recruitment and retention
The lessons from the feasibility findings were applied to address the common barriers to participant recruitment and retention in the main study design
Summary
Previous studies have shown that stigma is a major barrier to participation in psychiatric research and that individuals who participate in psychiatric research may differ clinically and demographically from nonparticipants. Few studies have explored research recruitment and retention challenges in the context of personality disorders. Borderline personality disorder (BPD) is one of the most common comorbidities in psychiatric populations. Previous studies have shown that stigma is a major barrier to participating in research on mental illness in general [8, 9]. This poses a major issue in psychiatric research, as it can reduce external validity of research findings
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