Abstract

Understanding key healthcare system challenges experienced by women during pregnancy and birth is crucial to scale up available interventions and reduce perinatal mortality. A community perspective about preferences and experience of care during this period can be used to improve community-based programs to reduce perinatal mortality. Using a qualitative exploratory approach, we examined women's experience of perinatal loss, aiming to understand the main factors, as perceived and experienced by women, leading to perinatal loss. Qualitative in-depth Interviews were conducted with 25 mothers with a recent perinatal loss, three family members, six healthcare officials, and two focus group discussions with 17 lady health workers. Data were analysed using inductive and deductive coding, by thematic analysis. Our findings revealed three distinct but interrelated themes, which include: 1) poor access to care during pregnancy and birth, 2) unavailability of appropriate healthcare services, and 3) poor quality of care during pregnancy and birth. Women frequently delayed seeking formal care around birth because of delays by themselves, their family members, or the local traditional birth attendants who frequently induced births at women's homes without recognising the dangers to the mothers or their babies. Preference for private care was common, however they often could not bear the cost of care when they needed caesarean section or in-patient care for their sick newborns because these services were absent in public health facilities of the district. Referral to the regional tertiary care hospital was often not officially arranged leading to risky births in small and crowded private clinics. Women's views about negative staff attitudes and the lack of attention given to them in public health facilities highlighted a lack of quality and respectful antenatal care. Improvement in women's access to essential care during pregnancy and around birth, availability of emergency obstetric and newborn care, improving the quality of maternal and newborn care in both public and private health facilities at the district level might reduce perinatal mortality in Pakistan.

Highlights

  • The burden of perinatal mortality comprising of stillbirths and early newborn deaths continues to be a challenge in low-income countries in South Asia and Sub-Saharan Africa [1]

  • We explored women’s experience of using healthcare during pregnancy and birth to understand factors related to healthcare access and utilisation which may have contributed to their perinatal losses

  • This study brings to the fore the need for a context-specific comprehensive strategy to prevent perinatal mortality in Pakistan

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Summary

Introduction

The burden of perinatal mortality comprising of stillbirths and early newborn deaths continues to be a challenge in low-income countries in South Asia and Sub-Saharan Africa [1]. With ~244, 700 neonatal deaths within first week after birth in 2015, Pakistan ranks second in the list of countries with the highest neonatal mortality rate [3] To put this in perspective, most high-income countries have an average stillbirth rate of 3 5 per 1000 total births.[4]. Perinatal mortality is a highly sensitive indicator of the quality and accessibility of care received during pregnancy and at the time of birth [5]. This suggests that some perinatal mortality is preventable through interventions [6]. The main risk factors [9] and interventions to prevent perinatal mortality have been identified [10], there still exist gaps in our understanding of how these interventions are integrated within community-based maternal and child healthcare services in countries with a high burden of perinatal mortality

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