Exploring providers and survivors perceptions of dedicated cancer survivorship care clinics.

Abstract

117 Background: The complex physical and psychological sequelae faced by cancer survivors require methodical follow-up care. A growing body of evidence suggests clinics and providers dedicated to survivorship care is a promising approach for addressing these needs. Yet there is limited published data of survivors and providers' perceptions of dedicated survivorship care. This study’s objective was to ascertain the strengths and weaknesses of clinical services provided in survivorship clinics. Methods: This study used a mixed-methods approach with stratified purposive sampling in the breast, genitourinary, and head/neck survivorship clinics. Characteristics used for stratification included: disease site, staffing characteristics, and clinical infrastructure. Semi-structured interviews were conducted with survivors and stakeholders, i.e. providers and executive leaders. Staff trained in qualitative methods conducted the interviews. Standardized questions focused on: 1) overall impression of the experience, 2) perceptions of the survivorship care plan (SCP), and 3) recommendations for improving clinical services. A brief survey collected demographic and clinical data. De-identified interviews were audio-recorded, transcribed verbatim, and analyzed to confirm themes. Descriptive statistics were used to summarize all data. Results: A total of 52 participants (36 survivors and 16 stakeholders) were interviewed. Overlapping themes centered on value, continuity of care, and uncertainty about SCPs. Survivors often reported not being able to remember any details of the SCP. Providers felt “patients really like coming here…it’s not as stressful” while survivors reported finding value in receiving “coaching for having a better lifestyle”. Both groups discussed resistance to the survivorship transition process, particularly providers as illustrated in a statement that “they [survivors] are the best part of their day. Conclusions: Dedicated survivorship clinics were perceived as being valuable by both providers and survivors, despite challenges associated with services. Our findings suggest further work is warranted to better understand the nuances of survivorship care and clinics.